I am an outgoing person and I talk to strangers on a regular basis. Today I was at Starbucks drinking coffee and working on a few projects. I noticed that a Dr. from a local hospital walked in and I started a casual conversation with him. My intent was to raise a little awareness about Neurofibromatosis. Apparently him being a heart surgeon at a local hospital doesn’t give him much exposure to NF patients, even though NF patients regularly experience cardiac problems. I was surprised at his rude attitude. I didn’t want to take up too much of his time. I guess you have to be brave and willing to take chances when starting conversations with strangers. This business of being open and outgoing about medical conditions you have with the public isn’t as easy as I thought it’d be.
Tomorrow is a new day. . .
I think it’s time to consider a better approach to take with the public in general when discussing Neurofibromatosis. I’m not selling anything, asking for money, or trying to proselytize. I am merely attempting to create public awareness about a health condition that effects 1 in 2500 individuals.
I welcome any thought or suggestion you might have on how you've discussed Neurofibromatosis with the people you run into.
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